1What gets collected
Depending on the study: health history, measurements, lab results, questionnaires, sometimes scans, blood or tissue samples, and information from your medical records. The consent form lists what and why.
2Who may see it
- The study team, who need it to run the study
- The sponsor and monitors checking the work is done correctly
- The ethics board (IRB) and regulators
In the U.S., a form called a HIPAA authorization often accompanies consent and explains this in more detail.
3Coded data and shared data
Many studies replace your name with a code. Results are usually reported in groups, not individually. Some studies share de-identified data with other researchers. Ask whether yours does, and whether you can opt out of that.
4Samples and future use
If you give samples, ask how long they will be stored, whether they may be used for other research, and what happens if you withdraw. These choices are often separate checkboxes in the consent form.
5And on this website
Trialaro collects only what you give us, does not sell it, and never shares mobile information for marketing. Details are in our Privacy Policy.
General information only. This note is not medical, legal, or financial advice, and Trialaro is not a medical provider. Talk with your own doctor about your health.